Post by @demiandtom

Replying to @elvergalarda25 I’ve been really in my head the past few days and trying to stay as positive as possible. I was diagnosed with MS in 2020. At my worst, I couldn’t walk, I lost vision in my right eye, and I had chronic fatigue and brain fog. Thankfully since 2021 I’ve been stable, no new lesions, found a medication that was working for me and felt good even through back to back pregnancies. That all changed this past Sunday. I had an MRI two and a half weeks ago and as this has become standard for me I wasn’t too worried about my results. Then Sunday I got a notification that my results were ready. I logged and and saw the words “NEW LESION: present, upper vertical cord” & “T1characteristics: T1 hypointensity”. I was so upset, numb, sad, scared, and so many more emotions wrapped up in one. A few hours later, I got a message in my portal from neurologist I never spoken to before. I was confused who they were and asked to speak to my narrow team to review these and understand what it meant for me. Sunday turned into Monday, Monday turned into Tuesday and I was told that the first appointment available would be September 14. I reached out again and finally got a call today that I’m going to need another MRI. This time my brain, cervical spine, an thoracic spine with contrast. As of now, MRIs are scheduling 4 to 5 months out, but I’m hoping that with this new finding I’m able to get in sooner. As of right now, I don’t really know what this means for me in my health and I’m honestly a little bit scared. The only thing I can do right now is wait to find out when my MRI will be scheduled and go from there. I’m gonna continue to live my life as normally as I can without getting in my head. Over sharing all of this so someone else in their health journey feels less alone. Having chronic illness and one that’s typically invisible is so difficult - but we’re in this journey together. 🧡 #multiplesclerosis #ms #update