Post by @bseizurefree

It’s been a rough month for us. B should be enjoying his summer but yet he’s been spending it having several seizures every single night. I don’t like to show B’s strong seizures, they are so hard to watch even for me, but these middle of the night seizures are wrecking us. Not sure what needs to happen to stop them and I’ve been told it’s part of the progression of Dravet. 😔 we are tired #night #fyp #sleep #dravetsyndrome