⚠️ Death / end of life discussion ⚠️

@kissmyals25

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SoundTikTok sound · original sound - kissmyals25

Promoted product

Kiss My ALSkissmyals.com

KissMyALS

3 videos

Why it worked

The video resonated due to its emotional vulnerability and the creator's proactive approach to a difficult situation. By framing her decision as a way to contribute to research and help others, she created a powerful narrative of hope and purpose.

Summary

The creator, who is living with ALS, discusses her decision to donate her brain to science after death. She explains that this decision brings her peace and allows her to contribute to research that could help others understand and treat the disease.

Structure

1Introduction and personal context (living with ALS)
2Decision to donate brain to science
3Explanation of the scientific process and benefits
4

Original caption

TW: death & end-of-life planning 💙 Day 8 of 31. Today I’m talking about one of the harder decisions I’ve made: donating my brain to science after I die. It’s emotional to even type that, but it also gives me peace. If researchers can learn something from my brain that helps them understand ALS better, helps another family get answers, or contributes even one tiny piece toward better treatments someday, then I want that. ALS has taken a lot from me. But I still get to decide what I leave behind. And if part of me can keep helping after I’m gone, that means something to me. Thank you for listening to the hard conversations too. 💙 👣 If you made it to the end, you’re officially a TT Stepper. Leave me a question in the comments. Nothing is off limits. #fypシ゚viral #ALS #LivingWithALS #ALSAwareness #BrainDonation

More from @kissmyals25

Product placement

ALS (Amyotrophic Lateral Sclerosis) ACTS - it is a disease that affects the creator and is the subject of the discussion; removing it would change the video's topic. Kiss My ALS ACTS - it is a brand that the creator is building and is mentioned as a place to shop; removing it would change the video's topic.

Call to action

Leave me a question. Nothing is off limits. See you tomorrow for Day 9.

On-screen text

8/31 PROJECT Why brain donatlon? Nearly one in three people worldwide are affected by a neurologic disorder. Diagnoses of dementia and traumatic brain injuries are rising at alarming rates; addiction is a tragic epidemic, and serious mental illness is crushing our families. Additionally, our chances of developing a brain disorder increases drastically with age - and we are living longer than ever.

Transcript

I'm giving my brain away Hi, I'm TT I'm 30 years old and living with ALS week, I'm talking about the things people usually don't want to talk about One of the decisions I've made is to donate my brain to science after I die That still feels weird to say out loud But honestly, it gives me peace After death, researchers can study donated brain and nervous system tissue alongside someone's medical history to learn more about diseases like ALS They may look at things like how ALS damages motor neurons, genetic changes, and why the disease progresses differently from person to person And knowing that my brain could someday be a part of that research means a lot to me ALS has already taken so much from my body So there's something powerful about knowing that even after I'm gone, my body could still help researchers understand the disease that changed my life Maybe they will learn something from me Maybe my donation helps answer one small question maybe that answer becomes part of something that helps another person or another family someday I may never get to see what comes from it That part is hard But if part of me can keep helping after I'm gone then I want it to I can't control having ALS, but I can choose what I leave behind