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@kissmyals25

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Why it worked

The video resonates deeply due to its raw emotional honesty and vulnerability in discussing a difficult topic like ALS and its impact on family. The creator's personal story and her commitment to cherishing moments with her children create a strong emotional connection with the audience, encouraging engagement and support.

Summary

The creator, who is living with ALS, discusses the difficulty of explaining her diagnosis to her children. She shares how her son remembers her being more mobile and how she grieves the future moments she will miss with her young daughter. Despite the challenges, she emphasizes her commitment to living in the present, making memories, and showing up for her children.

Structure

1Introduction and personal context (living with ALS)
2The emotional toll of explaining ALS to children
3The impact on her son's memories and her daughter's perception
4The struggle with grief over missed future moments
5Commitment to living in the present and cherishing moments

On-screen text

*** Long video ALERT ***

Transcript

Original caption

Day 4 of 31. 💙 This one was hard to make. As a mom living with ALS, the hardest conversations aren’t with doctors. They’re with my children. My son is old enough to ask questions that no child should ever have to ask. My daughter is still little enough to see me as just Mom, and I hope she always feels that love more than anything else. I can’t control what ALS has taken from me. But I can control how I spend the time I have. So we make memories. We celebrate birthdays. We read bedtime stories. We laugh. We love each other a little harder. Because at the end of the day, I don’t want my children to remember ALS. I want them to remember their mom. 💙 If you made it to the end, you’re officially a TT Stepper. Thank you for being here. Leave me a question in the comments. Nothing is off limits, and I might answer yours in one of my next videos. #fypシ゚viral #ALS #LivingWithALS #ALSAwareness #MomLife

More from @kissmyals25

More breakout videos from this creator.

Hi, I'm TT Hi, I'm I'm 30 years old and I'm 30 years old and living with ALS living with ALS ALS Before we get started, Before we get started, please watch until please watch until started, started, please watch until please watch until the end and press all the buttons the end and press all the buttons the end and press all the buttons the end and press all the buttons You really be helping me out and helping more You really be helping me out and helping more out and helping more out and helping more people learn about ALS people learn about ALS people learn about ALS people learn about ALS One question you guys asked me was, how are One question you guys asked me was, how are your conversations with your children about your your conversations with your children about your your conversations with your children about your your conversations with your children about your diagnosis diagnosis going? going? This question honestly took me a minute This question honestly took me a minute This question honestly took me a minute This question honestly took me a minute to answer because there really aren't words to to answer because there really aren't words to to answer because there really aren't words to to answer because there really aren't words to describe describe what it's like trying to explain what it's like trying to explain what it's like trying to explain what it's like trying to explain a terminal disease to your own child a terminal disease to your own child a terminal disease to your own child a terminal disease to your own child diagnosis diagnosis My son is 10 My son is 10 He's old enough to notice the changes He's old enough to notice the changes He's old enough to notice the changes He's old enough to notice the changes the changes the changes He remembers when I could run around with He remembers when I could run around with him him He remembers when I didn't need a wheelchair He remembers when I didn't need a wheelchair He remembers when I didn't need a wheelchair wheelchair wheelchair Now Now I watch I watch little pieces of myself little pieces of myself and that's something no child should ever have to and that's something no child should ever have to and that's something no child should ever have to watch watch He's asked me questions that stopped me in my He's asked me questions that stopped me in my He's asked me questions that stopped me in my He's asked me questions that stopped me in my tracks tracks Questions no mom is Questions no mom is ever prepared ever prepared to answer to answer I always tell him the I always tell him the truth, but I also remind truth, but I also remind him that today I'm still here him that today I'm still here him that today I'm still here My daughter is only three My daughter is only three To her, this is just mom To her, this is just mom She doesn't know the version of me that could She doesn't know the version of me that could chase her chase her around the house around the house She doesn't know She doesn't know that I'll never be able to run and play with her that I'll never be able to run and play with her be able to run and play with her She just knows I'm the one who She just knows I'm the one who reads her bedtime stories, reads her bedtime stories, kisses her goodnight, and loves her kisses her goodnight, and loves her with everything I have with everything I have with everything I have Sometimes, after they're asleep, Sometimes, after they're asleep, I sit there and grieve I sit there and grieve Not because I'm afraid for myself, but because I Not because I'm afraid for myself, but because I think about think about everything I want to be here for everything I want to be here for Their first heartbreaks, learning to drive a car, Their first heartbreaks, learning to drive a car, graduations, graduations, weddings, weddings, the ordinary moments that parents spend the ordinary moments that parents spend a lifetime looking forward to a lifetime looking forward to Then that's what ALS steals from you Then that's what ALS steals from you Not just your muscles, Not just your muscles, but it steals your future but it steals your future But I refuse to let it steal today But I refuse to let it steal today So I show up So I show up I laugh I laugh with them with them I make memories I make memories with them with them I celebrate every I celebrate every birthday, every bedtime birthday, every bedtime story, every hug story, every hug because I know those because I know those moments matter more moments matter more than anything than anything I hope when my kids think of think about me I hope when my kids think of think about me one day, one day, they don't think about they don't think about ALS ALS They think my mom They think my mom loved us with everything she had loved us with everything she had If you made it until the If you made it until the end, you're officially end, you're officially a TT stepper a TT stepper Leave me a question in Leave me a question in the comments the comments Nothing is off limits and your question Nothing is off limits and your question may be featured in one of my next may be featured in one of my next videos videos I love all my steppers I love all my steppers I'll see you tomorrow I'll see you tomorrow for day five for day five