DR. BAYO RESPONDS

I feel desperate and I feel like I need help, and I am honestly scared for my life. Like, I'm genuinely scared for my life. I've had this on my face starting like a year now, and it's growing rapidly. And I have seen an ENT, a dermatologist, a neurosurgeon, two different hospitals, and they tell me that based off of my scans, I was born with lymphatic malformation, even though this has appeared within a year and it is growing so fast and nobody can help me. Literally, out of all five doctors or places that I've been to, I keep getting referred to other places because nobody can help me. And in the meantime, this thing is just growing on my face. So I just... If somebody knows any answers, please, or any other ideas, or somebody who will take 15 minutes to investigate on even the proper place to send me to, because at this point, I'm so frustrated that I keep getting sent to places just to be told that they are not experienced in this and cannot help me. It took so much courage to go online and share this, and I would love to provide a couple more things that could be helpful as you try to navigate this journey. I'm Dr. Bayo. I'm a board-certified family medicine physician and health advocate. You had mentioned in your video that you had been told that this could be lymphatic malformation. Let's talk about it. This is a condition where the lymphatic vessels or the channels that help move fluid throughout your body do not develop the way they should, and that can cause fluid to build up and create the swelling that you are seeing. Now, if you find the right specialist, there are options that are available for treatment. However, it is so important to find the right doctor. If you are struggling to find someone, CliniciansWhoCare.com, which is a free community resource of people helping other people not only find doctors that provide quality care, but compassionate care, might be a great resource to look into. If anyone watching this right now knows the name of a lymphatic malformation specialist that could help Alyssa, please add their name to the list and drop a comment below so we can say thank you. I hope that you get answers as soon as possible, and thank you so much for sharing your story.